Simple Ways to Show Up for a New Mama in the NICU
So you have a friend or a loved one with a baby in the NICU? And you’re wondering what you really can do to help? I hope after reading this blog you feel like you’ve come to the right place!…
So you have a friend or a loved one with a baby in the NICU? And you’re wondering what you really can do to help? I hope after reading this blog you feel like you’ve come to the right place!…
Fear, shock, anger, grief, sadness, and devastation were big themes in the moments following our daughter’s birth. Callie was born on Halloween. She arrived two months ahead of her due date with a surprise diagnosis of Tetralogy of Fallot and…
Read More »As a mama of a little girl who wears a prosthetic leg, we struggled when she was younger to find pants that would fit over her prosthetic leg. Invariably, her pants would rip at the knee where her hinge was…
Read More »A few weeks ago, my therapist had me write a letter to myself. One that I wished I could have opened up and read shortly after Callie’s birth. She said to fill it with things I wish I had known,…
Read More »I will never forget the first time I saw my daughter being openly excluded at school. I was volunteering in the classroom that day and it was “free play” time. The kids all scattered to different parts of the room–dress…
Read More »As a mama, I find myself counting the hours of potential rest I’m going to get before Callie gets up in the morning or calculating the amount of coffee I’m going to need to intake before I can function at…
Read More »I remember talking to a nurse in the hallway after Callie had her second open heart surgery. I literally was dead on my feet. I hadn’t eaten or slept in days. She lost a ton of blood during the procedure…
Read More »As a parent of a disabled child, I feel like I’m constantly advocating. I’m constantly looking for ways to educate, shed light, call out areas of opportunity for people like Callie. I’m passionate about it, fired up, and want to…
Read More »Self care is often misunderstood as being selfish. And as a parent to a child with a disability, sometimes self care is the absolute last thing on my mind. I’m too busy focusing on physical therapies sessions, ordering prosthetic leg…
Read More »For someone with a disability (or a parent to someone with a disability), the relationships we have developed with Callie’s doctors have been paramount to her success. And honestly, for our family, it feels like we’ve seen SO MANY doctors…
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