Good Night Hospital Room
In the small hospital room There was a big bed. And a ventilator And a portable x-ray machine. And a tall IV stand and a fold out chair. A tired Mama and Daddy. A brave little warrior princess. And a…
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Marriage with a Special Needs Child
By most accounts and statistics, our marriage should have deteriorated already. A child with special needs? A wife with a chronic disease? A husband with career in one of the most stressful professions? You would expect we would have failed. …
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Pool Days
Last weekend I took Callie to the pool at our gym. For most families, going to the pool isn’t a big deal. For us, it’s a bit of an adventure. I won’t lie, I normally try to steer her away…
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Riding the Waves of Grief….
There is a unique kind of grief that comes along with being the mama of a child with special needs. For me, the grief has come in waves. At the beginning, they were threatening to overtake me–constantly pulling me underwater…
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Life After Becoming a Mama
Everyone said life would change. They held my hand and looked at my growing tummy and smiled. They shared stories, advice, and tried to convey the drastic shift that was going to come to my life after giving birth. I…
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The Best Day and The Hardest Day….
I remember planning out this day for Callie. We’d picked our outfits out and planned to get ice cream after we went to the opening of the new Flower Vault installation. We’d had such a blast at the Holiday one…
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Strong like a Mother
Before I had Callie, I thought I was strong. I managed my own chronic illness, worked two jobs, and went to school. I was out spoken and lively. I did a lot, gave a lot, and was a lot for…
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Days Like This
As a mama, I knew there’d be days like this. Days where I’m so tired. Days where everything tests my very last nerve. Days where I literally am so all over the place its a miracle I’m standing up right…
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How Do You Do It?
I get asked that question a lot. And it’s understandable. Short of my husband and maybe our immediate family, not many people can understand or have insight into what our life consists of….. I’m a Type One Diabetic. I am…
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What’s Your Super Power?
We had to do Callie’s IEP for next school year a few weeks ago. For those of you that don’t know what an IEP is, its an individualized education plan that we fill out for the school. It details what…
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