3 Things You Can Do at the Beginning of the Year to Advocate for Your Disabled Child

January 2, 2025 in Disability & Inclusion - No Comments

Each new year brings a new opportunity to evaluate a few things for your child’s healthcare. You can think about their unique physical and mental well-being and determine what you need to schedule, update, and review.

Planning ahead is such a game changer.  It helps me stay organized and on top of things–I tend to thrive when I have a clear cut plan of action and know what things I have on my calendar each month. These cozy and slower times at the beginning of the year are a great opportunity to set yourself up for success.

Early January is the perfect time to do these three things:

1. Review your insurance plan

Before you can figure out how to use your plan, you have to know what’s in it.

A lot of people fail to take advantage of the benefits that are offered by their health insurance policy simply because they don’t know they exist – or even worse, they end up paying out-of-pocket for expenses that may have been covered.

Health insurance companies are required to provide a summary of benefits and coverage written in simple language. If you don’t get it in the mail at the beginning of the year, you can log on to your health insurance website or call the number on the back of your insurance card and ask for them to send you a copy.

At the start of each year, take a few minutes to look over your summary of benefits, even if you’ve had the same plan for a long time and you’re pretty sure you know what’s in it.

2.  Update your child’s 504 plan

A 504 plan is a blueprint for how the school will support a student with a disability and remove barriers to learning. The goal is to give the student equal access at school.

504 plans often include accommodations. These can include:

  • Changes to the environment (like taking tests in a quiet space)
  • Changes to instruction (like checking in frequently on key concepts)
  • Changes to how curriculum is presented (like getting outlines of lessons)
  • Changes to schedule (like allowing extra  time to move between class periods)

Accommodations don’t change what kids learn, just how they learn it and how they navigate the school experience. The goal is to remove barriers and give kids access to learning.  The new year is a perfect time to review your child’s current 504 plan and ensure all accommodations are still appropriate and applicable to your child.

3.  Schedule Yearly Appointments

At the beginning of the year, I take out my previous years planner and review each month.  I make note of the medical appointments Callie had and then I block off one afternoon during the first week in January to call and schedule her yearly follow up appointments.  A lot of the times, I have already scheduled a lot of these at our last appointment but there are others that I do need to tackle–vision, kidney doctor, and her annual physical for school.  Getting them scheduled and on the calendar keeps me from “dropping” the proverbial ball plus it reduces the stress that can come with trying to get into a fully booked clinic later in the year.

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Jaime

Jaime is a writer, editor, and lifestyle storyteller focused on modern womanhood, slow living, and life after survival mode. As the founder of The Wildflower Edit, she creates thoughtful, beautifully honest content at the intersection of motherhood, disability, emotional healing, and intentional living. Her work invites women to edit their lives with care — keeping what feels true and releasing the rest — for anyone learning to bloom in their own way.

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For the women blooming in unexpected places…..

For the women blooming in unexpected places…..

Hi Y'all

Hi, I’m Jaime — writer, mother, storyteller, and the heart behind The Wildflower Edit. For nearly a decade, I wrote online as The Princess and the Prosthetic, sharing my daughter’s journey with disability and the lessons our family learned along the way. It was a beautiful season — full of advocacy, connection, and community — but as my daughter grew older, I felt a shift. She deserved more autonomy. More privacy. More room to decide how she shows up in the world. And I realized something else: My own story was expanding too. Motherhood was still here. Disability was still here. But so were grief, healing, womanhood, nervous system care, feminine energy, homemaking, identity, softness… the fuller, deeper pieces of life that were ready to be spoken aloud. Whether you come for the cozy routines, the motherhood reflections, the disability advocacy, or the soft life inspiration — thank you for choosing to share this space with me. Pour a warm drink. Settle in. Let’s grow a life that feels like you again.

Jaime

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