Our First Few Days…..
“It’s her heart.” That’s what the doctor said to us when they all gathered into my hospital room shortly after giving birth to Callie. They tried to explain the intricate surgery she would have in 4 short days. Tried…
“It’s her heart.” That’s what the doctor said to us when they all gathered into my hospital room shortly after giving birth to Callie. They tried to explain the intricate surgery she would have in 4 short days. Tried…
Callie loves animals. Except bugs. She probably would be ok if we burned down the house simply because there was a spider in it. She will, without fail, wake up at 6AM on the weekend but we have to drag…
Read More »We get asked this a lot. And the short answer is…..I don’t. There are some days I want to kick rocks. That I rage at the world and I cry. That I am so incredibly heartbroken that it hurts to…
Read More »Last weekend I took Callie to the pool at our gym. For most families, going to the pool isn’t a big deal. For us, it’s a bit of an adventure. I won’t lie, I normally try to steer her away…
Read More »There is a unique kind of grief that comes along with being the mama of a child with special needs. For me, the grief has come in waves. At the beginning, they were threatening to overtake me–constantly pulling me underwater…
Read More »Before I had Callie, I thought I was strong. I managed my own chronic illness, worked two jobs, and went to school. I was out spoken and lively. I did a lot, gave a lot, and was a lot for…
Read More »I get asked that question a lot. And it’s understandable. Short of my husband and maybe our immediate family, not many people can understand or have insight into what our life consists of….. I’m a Type One Diabetic. I am…
Read More »We had to do Callie’s IEP for next school year a few weeks ago. For those of you that don’t know what an IEP is, its an individualized education plan that we fill out for the school. It details what…
Read More »You might be the parent of a warrior princess if……. You have a first name basis relationship with the pharmacist. And her doctor and school nurse. You might be the parent of a warrior princess if you find yourself yelling…
Read More »We spent 3 months in the NICU after Callie was born. Three long, brutal, exhausting months. Three of the longest months of my life. The bright spot in those long months were our nurses. In fact, in this entire journey,…
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